Liliana Lousie Kieffer, the only daughter of social media influencer Lizzie Kieffer, who chronicled her life with autism on TikTok, died on April 23. Her family, who lovingly referred to her as “Lily” and their little “angel,” are devastated. They grieve for the loss of an extraordinary child who gave their life so much joy, even during her brief time on this earth.
Lilian’s death occurred only ten days after she celebrated her first birthday on April 13. Her family said she was a warrior in her battle against a major health challenge. In a sad twist, a “large mass on her brain” was cited as playing a role in her early passing. Her mom, Lizzie Kieffer, boasts almost 300,000 followers on her own Instagram account. She broke the tragic news to her followers and spoke movingly about the deep individual and collective contribution Lilian made to their lives.
The Kieffer family, including Lilian’s father, Matt Kieffer on a recent trip to Costa Rica. It’s got her big sister, Mia Kieffer, who is two years old. The family continues to remember Lilian as “Daddy’s little girl,” whose favorite pastimes included playing and exploring the world around her. They celebrated her life by speaking about her joyful spirit. Getting in the big ball pit and zooming around in her new little red car with Mia reintroduced the giggles.
In the aftermath of their defeat, Lizzie Kieffer opened up her pain by writing a moving eulogy. She stated, “You will always, always be a part of us and although the hole will never be filled, speaking your name will sing through our days bringing joy into the moments.” This reflection speaks to the lasting affection and fond experiences they’ll remember and take with them for years to come.
This fall, the Kieffer family will welcome home another baby come September. This blissful development leaves them with a multitude of emotions—from hope to heartbreak—as they work through their grief journey. Lizzie reflected on how Lilian had “taught [them] more in 1 year than most can in their life,” highlighting the depth of wisdom and love that a child can impart even in such a brief time.
Though breaking our hearts, in the middle of their devastated grief Lizzie and Matt expressed a profound sense of peace rooted in their faith. They expressed, “You’re our light in this darkness and we know God is holding you in an extra special place.” This quote is their way of documenting this belief in a spiritual connection that they will eternally have with Lilian.
